Development of a child and family centred outcome measure for children and young people with life-limiting and life-threatening conditions: progress to date on the Children’s Palli... by Debbie Braybrook, Lucy Coombes, Daney Harðardóttir, Hannah M. Scott, Katherine Bristowe, Clare Ellis-Smith, Anna Roach, Christina Ramsenthaler, Myra Bluebond-Langner, Julia Downing, Fliss E. M. Murtagh, Lorna K. Fraser, Richard Harding

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